Upcoming EventsOct5Fri17:15 Sickle Cell Patient FormSickle Cell Patient FormOct 5 @ 17:15 – 19:30Hot Topics: Managing Pain (Pain Clinical Nurse Specialist Team), Psychology, Hydroxycarbamide, Welfare Support Advise, Patient Experience Bone Marrow Transplant, AOB.. HAVE YOUR QUESTIONS READY! Come meet fellow patients and share your experiences and influence your service. Refreshments will be provided. … Continue reading →Oct22MonNov21Wed13:45 Nursing Education EventNursing Education EventNov 21 @ 13:45 – 17:00This event is for: Consultants, clinical academics, nurses, medical trainees and other healthcare professionals from the network region involved in the care of adults and children with sickle cell disease and thalassaemia. To register and reserve your space please … Continue reading →
Category Archives: Patient involvement
On 15th March Sharon Fevrier launched her debut novel, Blossom Tree: Love, Burn, Rise, in Greenwich. Blossom Tree was inspired by Sharon’s own experience of living with sickle cell disease and how she became partially sighted as a result. It … Continue reading
For more information download the poster here.
The Sickle Cell Society recently collaborated with Patient Voices and recruited participants to a residential workshop for families with sickle cell in order that they could script and produce videos to tell their stories. Stories by parents, children with sickle … Continue reading