Category Archives: Patient involvement

Book Launch: Blossom Tree by Sharon Fevrier

On 15th March Sharon Fevrier launched her debut novel, Blossom Tree: Love, Burn, Rise, in Greenwich. Blossom Tree was inspired by Sharon’s own experience of living with sickle cell disease and how she became partially sighted as a result. It … Continue reading

Posted in Patient involvement | Comments Off on Book Launch: Blossom Tree by Sharon Fevrier

Parent Ambassadors: Sickle Cell & Young Stroke Survivors

                                    For more information download the poster here.

Posted in Patient involvement | Comments Off on Parent Ambassadors: Sickle Cell & Young Stroke Survivors

‘Terrific Teens’ Videos

The Sickle Cell Society recently collaborated with Patient Voices and recruited participants to a residential workshop for families with sickle cell in order that they could script and produce videos to tell their stories. Stories by parents, children with sickle … Continue reading

Posted in Patient involvement | Comments Off on ‘Terrific Teens’ Videos

Interview with Kehinde Salami

Last autumn we interviewed Kehinde Salami, founder of SickleKan, for our patient newsletter, Red Cell News. He talked about the charity he founded to raise awareness of sickle cell and shared his experience of managing sickle cell. Find out more … Continue reading

Posted in Patient involvement | Comments Off on Interview with Kehinde Salami