Sickle Cell Awareness Day (Event) 2019

We would like to thank everyone for attending our networks annual sickle cell awareness day which took place on the 3rd July out in the community. We had some magnificent presentations from a number of medical professionals including members of the community and some of our lovely patients.

 

We also had some fantastic live entertainment from Nelena Paparisva who was a finalist from the eurovision song contest in 2015 and also a great performance from Shekayla Blaze who’s a very talented gospel singer. We had an excellent turn out of around 80 people. If you happened to miss out on the event this year then don’t worry as there is always next year which will be bigger and better. If anyone has any suggestions or would like anything in particular to be presented in our next event then please do get in contact: info@ststn.co.uk. In the meantime please keep an eye out on our website for upcoming events.

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We would like to welcome Dr Kate Gardner to the STSTN Network

Dr Kate Gardner HaematologistDr Kate Gardner is a consultant haematologist at Guy’s and St Thomas’ NHS Foundation Trust with a specialist interest in red cell disorders.  She was awarded a PhD in 2017 during her Clinical Research Fellowship where she investigated the genetic basis of clinical variability in sickle cell disease. She has published both molecular research and clinical reviews in haemoglobinopathies. She has given talks internationally on sickle cell disease. Kate is also involved with clinical trials in sickle cell disease. She is continuing her research interest in the underlying genetics of sickle cell disease in an attempt to identify why some people are more severely affected than others – and, hopefully, novel molecular insights into sickle cell disease could drive new therapies.

 

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Prescription Charges Questionnaire

 

 

 

 

 

 

 

 

The Sickle Cell and Thalassaemia All Party Parliamentary Group (SCTAPPG) is looking to research the effect of prescription charges on the day-day lives of service users. With your help we hope to shine a light on this burning injustice that so many people face. If you have any queries about this research please contact: adam.lloyd@sicklecellsociety.org

Please kindly click on the link below to fill out the questionnaire

https://docs.google.com/forms/d/1hpc-554lab0dP2SDQwe2aB8D1796dvDfsHTgR5Sq9Tw/viewform?edit_requested=true

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Travel Insurance For Sickle Cell

This list is collated from experiences of people with sickle cell, who have found these insurers help them. Please note that insurance premiums are likely to be higher for people with sickle cell, and insurance may also vary based upon circumstances, e.g. whether you have had a bone marrow transplant, what medication you are taking, etc.

If you live with sickle cell and have had a positive or negative experience with any of the insurers on this list, or want to recommend another insurance company, please send your feedback to info@sicklecellsociety.org

World First – 0845 908 0161 – https://www.world-first.co.uk/home/travel-insurance/medical-problems/blood-disorders/sickle-cell-anaemia.aspx

All Clear Travel Insurance- 0845 250 5350

Make Sure Travel- 0845 309 4436

Worldwide Insurance Services- 01892 833 338

Freedom Insurance Limited- 08707 743 760

Able 2 Travel- 01892 839 501

Voyager Insurance Services- 01483 562 662

Avanti Travel Insurance- 01376 560 844

Explorer Travel Insurance- 01244 665 700

Top Dog Insurance- 0800 954 9932

Holiday Extras- 0800 093 5478

Elect Travel Insurance- 0844 980 0211

Flexi Cover Direct- 0843 479 2346

Good to Go Insurance- 0844 334 0160

 

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