Guide to sickle cell employment

Sickle Cell Disorders (SCD) & Employment

Sickle cell disease or sickle cell disorder (SCD) is the most common single-gene condition in England, with around 15,000 people living with SCD. The sickle cell gene is more widespread in areas of the world that either are, or were once, malarial. It is an inherited life-long condition, characterized by severe pain, chronic pain, chronic anaemia and fatigue, with the possibility of long-term organ damage. SCD is very variable both between different people and within the same person over time.

The aim of this project is to co-produce evidence, working together with people living with SCD of: 1) barriers to employment and 2) enablers to employment. The project is funded from January 2018 to January 2020

Sickle Cell Work & Employment Guide

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STSTN Network Red Cell Newsletter Issue (12)

The latest edition of our STSTN Network Red Cell newsletter is finally here. Please keep an eye out for our newsletter issue 12 around your local centers. You can also find an online copy here. Download and read here


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Donation Of Blood – Giving

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Sickle Cell Awareness Day (Event) 2019

We would like to thank everyone for attending our networks annual sickle cell awareness day which took place on the 3rd July out in the community. We had some magnificent presentations from a number of medical professionals including members of the community and some of our lovely patients.


We also had some fantastic live entertainment from Nelena Paparisva who was a finalist from the eurovision song contest in 2015 and also a great performance from Shekayla Blaze who’s a very talented gospel singer. We had an excellent turn out of around 80 people. If you happened to miss out on the event this year then don’t worry as there is always next year which will be bigger and better. If anyone has any suggestions or would like anything in particular to be presented in our next event then please do get in contact: In the meantime please keep an eye out on our website for upcoming events.

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