To improve the patient experience by offering better treatment outcomes for people with sickle cell disease and thalassaemia
STSTN is led by consultants from two large teaching hospitals: King’s College Hospital (KCH), Evelina Children’s Hospital and Guy’s and St. Thomas’ (GSTT) all of which have about 1000-1200 patients with haemoglobinopathies.
The network also includes two district general hospitals, University Hospital Lewisham and the Queen Elizabeth Hospital Woolwich, with over 400 patients. In addition, hospitals including Croydon University Hospital and Darent Valley Hospital, feed into the network and have seen growing populations of patients with haemoglobin disorders.
The network also has strong links with centres across South London and beyond, including Medway Hospital and Brighton and Sussex University Hospital. St. George’s Healthcare NHS Trust (a specialist tertiary centre for South West London and Surrey) is part of the South West London Network, however we collaborate closely on a number of areas, including guidelines and psychological support.
Our goal is to improve the patient experience and we hope to achieve this by the following key objectives:
- To establish and maintain joint methods of working throughout the network
- To collaborate in specialist clinics including renal, obstetrics, orthopaedics, cardiology, neurology, urology and liver
- To publish guidelines on the care and treatment of sickle cell disease and thalassaemia
- To produce patient information sheets and a quarterly newsletter to highlight patient experiences and to update on the latest treatment and research news
- To develop consistent pathways of care to ensure equitable care is provided across the network
- To provide expert clinical advice to healthcare professionals working in other services
- To increase the understanding of a patient’s experience of SCD and thalassaemia via Patient Forum/Awareness events
- To provide a peer-support network and educational programme for consultants, GPs, nurses, trainees and other healthcare professionals
- To promote clinical excellence and improve clinical care
- To disseminate information and raise awareness of ongoing research in the UK and internationally
- To support audits that may be used to improve patient outcomes and experience
- To feed into the National Haemoglobinopathy Registry, which will facilitate research into red blood cell disorders