The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. I still do have some hearing loss in my right ear but it is not something to worry about now, although they say in the future I may need a hearing aid. An anyone please tell me about possible salivary gland infection, after thyroidectomy and RAI in December 2017. However, the location on the neck minimizes the likelihood of keloids. Keep a log of questions. I was immediately put on levothyroxin and sent home. We got to know each other, and exchanged some friendly banter on a variety of topics including football and hockey. The .gov means its official. The surgical report says, The patient had a 5-cm incision created in line of relaxed skin tension. Post thyroidectomy neck pain after endoscopic thyroidectomy. Linking evidence to action: I had to drive to Denver three days in a row. I know the levels that I'm supposed to maintain at are different from those of normal people with a thyroid and no cancer history. September 17th took S. to Madigan for her weight loss surgery; J. came with me to help me through the waiting. Karen & Dennis. My biggest node was 3.5cm, with a couple other in the 2-3cm range, plus ~30 cancerous lymph nodes. Dr H. thinks everything is looking good and she retires on the 19th of Aug. Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. PLEASE REMEMBER this is just my experience. Some of what I posted before was right after surgery via my smartphone. The nurse said, how was that. I went to both appointments with a list of written questions. A few days later she called again and said that my Vitamin D is also very low and I would have to have another appointment with my PCM to get high dose Vitamin D pills. I didn't overly strain, but I did have one day where the pain meds must have overwhelmed the stool softener and I pushed a little harder than I think I should have. A nurse came in shortly after that and I started an IV with a saline drip. July 14th Thursday Bangor Dental appointment with x rays my teeth look healthy just needs some cleanings, they also checked to make sure the radiation therapy I had didnt cause any tooth damage, so far so good. Do not scrub the wound or put pressure on it with high pressure water or your fingers. Stretching exercises vs manual therapy in treatment of chronic neck pain: a randomized, controlled cross-over trial. I chose the doctor that did 350 to 500 thyroidectomies per year (he was also the doctor who didn't use the larynegal nerve monitor). I said, it hurt like hell. However, after getting through that process, I was back to being pretty much completely normal. I'd had nine surgeries before my TT. The pain is in the natural curve of my neck, about 2-3 inches above the incision. When I first started this journey I read that thyroid cancer is a good cancer to have and I told my family this to ease their fears (and mine). To analyze the effect of neck stretching exercises, following a total thyroidectomy, on reducing neck pain and disability. Wednesday and Thursday I continued to improve. This hospital uses fentanyl and midazolam post-op. Just allow some water to run over the incision site and cleanse it. While, thicker things like ice cream and yogurt move down more slowly. In the meantime non-invasive treatments based on ultra sound, radio-frequency may help. As his caregiver I am feeling so helpless. Then, they hit me with propofol and the lights went out. The initial screening showed no cancer on that side once removed. Now I am two months post thyroidectomy (and 1.5 weeks pre-RAI) and I am experiencing throbbing, stabbing (on and off for the past few hours) ear pain in my right ear. Unauthorized use of these marks is strictly prohibited. HHS Vulnerability Disclosure, Help I only lost 2 lbs on the diet and basically ate rice cakes and carrots for 4 weeks. She also gave me hints to help minimize the surgical scar. 6) Went hypo for 6 weeks (didn't even understand what that meant until I physically got to experience it), fought to get RAI pushed earlier when TSH hit 97.99 and I had constant migraines, and no one ever mentioned LID (but I believe that didn't end up being so bad - as I did LID anyway after reading online 5 days prior and before that I was low enough naturally). I still have poor vocal range and intensity. 2010. For those that are getting ready to have this surgery I would never say "don't be scared," I would just say let the fear come like you are going skydiving and know that it will be over soon and things will start getting much better. There they did a strep test (I'd had a sore throat off and on for a year) and a ct scan. Methods: The question is has anyone had these symptoms: burning pain, dizzy, swelling post op 3 weeks ? 2011 Jan;34(1):62-71. doi: 10.1016/j.jmpt.2010.11.005. I did not have a JP drain, but I've had them for other surgeries and I know they are annoying. She did not develop other complications of thyroidectomy, such as bleeding, wound infection, vocal cord palsy or hypoparathyroidism. This was a process of 1 10 min neck scan followed by a 40 min full body scan and then a follow-up 10 min scan for an area that wasnt clear on the first scan (guess I moved too much) but I was informed by the tech unofficially that the scans looked clean. On the 4th of May 2010 I was back at Madigan for a radiation count on my thyroid followed by my second uptake dose of radiation (RI-123 UPTAKE) 2.8 mCi I-123 t1/2= 13.2 hours Twenty-eight patients who had undergone thyroidectomy and 28 healthy . I feel very lucky. It has become shrill and high-pitched. Complications are much less common and can include neck bleeding, permanent hypoparathyroidism that requires ongoing calcium replacement, and damage to . Lots of people on here talk about how awful having a thyroid replacement medicine is, and that no one ever feels totally ok on it. I knew something was wrong last June 2014 talked to my doc about a strange pain in my neck. 2 Sep end of my convalescence leave, and back to work. 2 Mar 2011 1 year from being told I have cancer. and transmitted securely. The best reason I can come up with is that water and juice rush down the throat hitting the sore spot quickly. Ask for prayers. At the end of the first week, the NPDS scores (mean [SD] = 8.82 [12.23] vs. 30.28 [12.09]), neck sensitivity scores (median [IR] = 0 [.75] vs. 2.00 [4.0]) and pain levels with neck movements (median [IR] = 0 [2.0] vs. 3.5 [5.75]) of the stretching exercise group were significantly lower than those of the control group. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. Get the latest news and education delivered to your inbox, Receive an email when new articles are posted on, Please provide your email address to receive an email when new articles are posted on. After a thyroid lobectomy, you'll need to have your thyroid hormone levels checked and will be prescribed a thyroid hormone replacement, if needed. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. I used regular tylenol only immediately following surgery and upon returning home. Medicine (Baltimore). Can it grow that fast from elevated TSH levels? However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). disability; neck pain; neck stretching exercises; thyroidectomy. As soon as you can turn your head without pain or difficulty (within about a week . I think my voice was the last thing to come back, but after 3 weeks that was fine as well. At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. I was also finally getting the follow-ups setup so they could deal with my loss of hearing (Stapendectomy) so I managed to get an appointment with the ENT Clinic. Follow-up of the patients with the scales applied in the experimental group were also performed to the control group at the same intervals. In general, thyroid surgery is well tolerated and the vast majority of patients will have a smooth recovery. Oh and the medical bills might be the end of us financially. You should not lift any heavy objects for about 2 weeks after your operation to avoid any strain on your neck. I went to bed and slept until 445 am when I took some Tylenol and went back to sleep until 730am. I know some of my mom's friends who have had it done that were out running a few days later. Numbness or tingling of fingers, toes, or around the mouth. Stretching exercises to reduce symptoms of postoperative neck discomfort after thyroid surgery: prospective randomized study. Increased swelling, redness, or drainage from the incision. Have a wonderful holiday season and thank you again so much to this board for existing. After surgery, you may have a scar at the base of your neck. Held at hospital 3 days post RAI, then stuck here since I have a 2.5 year old. This is very long and is intended for people new to the group who haven't had surgery yet. On March 2nd I was told I had several small foci of papillary carcinoma in the tissue of the right thyroid that was removed and that the entire mass was being sent to another hospital for further research but it looks benign the doctors recommended removing the other side, we decided that was the best plan. Care and Management of Voice Change in Thyroid Surgery: Korean Society of Laryngology, Phoniatrics and Logopedics Clinical Practice Guideline. Difficulty swallowing. After the shot of midazolam, I was willing to put the gown back on along with the anti-clotting boots. I had many thyroid nodules but the largest,cancerous one was 3.8 cm. A later CT scan also showed some suspicious pulmonary nodules in the lungs. 9 Mar 2011 1 year from having thyroid removed The usefulness of rehabilitation (i.e., a stretching exercise) for reducing these symptoms after surgery has never been studie Find other members in this community to connect with. Vascular dilation on the other side of the face may or may not be present (Figure 1). Suffice to say, I was a total and complete mess. My throat feels full and I still feel "gaggy" from time to time. I told them I had good insurance and that I'd take care of the bill after surgery (which is the arrangement I had with every other service provider for my thyroid cancer). I visited her in the hospital on the 18th she was looking real worn out that day, but by the 19th when I took Sylvia there she was doing much better. As of august I am no longer seeing mental health, they think Im normal, and I am feeling a lot better. Mentally I feel like I have cleared this massive hurdle. Objective: Show quoted text. Some of it was while I was still sore and using pain meds. Epub 2021 Jun 1. Im going to try to remember to request a copy of my medical records when I go in a few weeks to see my oncologist, but what numbers does your doctor like to keep you at? Could be in the supermarket or at KFC, I have no idea. I was under a great deal of stress and thought that was why I gained so much weight so quickly. Your thyroid gland is shaped like a butterfly. However, such measures have not been evaluated by randomized controlled trial . Now, I know the surgeon has rethought his position and is now recommending going hypo with T3 as an intermediate therapy. Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday One more (indelicate) thing, take the stool softener they give you. They required me to start out on a liquid diet, which I tore through like crazy (the cherry "ice" was really good). The participants were randomly assigned either to the stretching exercise group (n = 40) or to the control group (n = 40). Those are the same medications they give you for a colonoscopy. Was able to do up and down 3 times each leg. I woke up with full back and neck in spasm do to previous athletic neck and back injuries. Injury: Trauma and other injuries can damage muscles, ligaments, disks, vertebral joints and nerve roots in your spinal cord and lead to neck pain. The patient underwent total thyroidectomy with central and left lateral neck dissection. 2) Did anyone else get post RAI Ultrasounds and show remnant tissue in thyroid bed? I really hope you get the feeling that post-op will take good care of you. Sihawong R, Janwantanakul P, Sitthipornvorakul E, Pensri P. J Manipulative Physiol Ther. I have been on Levothyroxine 125 to 150 for 2.5 weeks and am starting to feel better from Hypothyroid symptoms. Was in Hospital 5 days post op with JP drain and limited help, had numerous asthma attacks due to not being able to eat and acid reflux. From there I went my 2nd physical therapy appointment, I am getting more movement in my knee and overall the pain is less, He also suggested some things I could try to help my balance while I was waiting for vestibular training to be fully approved by Tricare and setup. But, I wasn't really all that coherent, so I asked if I could have some water (remember, nothing to eat or drink from midnight the night before so, I'm getting on 23 hours without food or drink) CRUSHED GLASS IN ACID MIXED WITH GRAVEL couldn't have felt that horrible. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically was running out of energy. People with a history of keloids (excess scar tissue) may experience more scarring after thyroid surgery. 30 Nov 2011 Official Retirement from Navy. No idea why this report was 2cm and ultrasound showed 3cm. So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. A total thyroidectomy is surgery to remove all of your thyroid gland. Facial and Jaw pain. 2019 Aug 8;49(4):1185-1191. doi: 10.3906/sag-1812-55. I took all my own sheets, towels and wore gloves the first two days. So, here is a more detailed experience of what just the thyroidectomy was like. Tender neck : After surgery, it is natural for a patient to minimize . 18 October. Nothing like feeling normal. The first time I had RAI I had absolutely no symptoms. After surgery, you can expect some pain as your body heals. The diet is annoying, but even with being ridiculously strict (pretty much only ate fruits, veggies and egg whites), its only for a short time and at least is a good diet. Learned its horizontal vertigo or thats what Co. (my torturerphysical theraphist) said. Also, they put on my legs those devices that squeeze your legs to prevent blood clots, they said they'd hook them up in the OR. So, I feel like I'm ending on a negative note but this is my reality right now. On the 18th of June I went back to Dr Ch., Endocrinology at Madigan for follow-up on my CT scans and to check the balance on my thyroid meds. Now though my right knee has been making me limp a bit for the past few weeks will have a Dr Appointment while on convalescence leave. I'm not sure if this is related with the numb feeling I'm having. We talked a bit before he left (he's a great guy and a better doctor). So, seriously, take the stool softener. The patient reported no radiation exposure to head or neck during childhood, but she had a positive family history of thyroid cancer in two paternal cousins, nontoxic multinodular goiter in her father and sister, hypothyroidism in her mother and hyperthyroidism in her maternal grandmother. Now, the scar. At 18 days post surgery the throat pain flares up only if I over use my voice. Both surgeons recommended almost the exact same treatment plan. Stiffness and soreness greatly diminishes almost to the point of none at all. Both doctors answered every question openly and forthright. If you are taken care of only half as well as was I, then you will be in excellent hands at the hospital. Which on one hand I'm annoyed, but on other hand - if its cancerous GET IT OUT. I didnt get to see the Drs who did the surgery the Dr I did see told me to hold off on the CT scan and to go back to it if the vestibular training doesnt work. From the time I knew I would be "going under the knife" I started experiencing panic attacks, thoughts of extreme terror, and general malaise. By 6:30 or so I was famished. Ylinen J, Kautiainen H, Wirn K, Hkkinen A. J Rehabil Med. So, that worked out OK. The Annual International Thyroid Cancer Survivors' Conference and Regional Workshops, Front neck numbness post Total Thyroidectomy (TT). I quickly ordered mac and cheese and mashed potatoes. Now, it was time to take my dinner pills. Next for me is probably clinical trials for this lung stuff + more lymph node removal down the line since those are growing back, but for 95% of you that's not something you'll be having to deal with:) But basically my point in all this is that it doesn't have to be as scary as it's sometimes made out to be. Recommendations to newbies: My wife took my kids up to her parents in Wisconsin and my mom stayed with me in Chicago. There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. Nothing too bad though, and apparently I had the biggest dose you can give without being hospitalized, so most people will be getting less. Numb feeling on the front side of my neck between my chin and incision. But 100% the greatest advice I can give is to make sure you have the best doctor you can get. There is all kinds of chaos going on around the ICU as well, which is understandable since many of the patients in that unit are in extremely poor health and have important needs. My Dr (Endo) said he did not want me in his office for another 7 days and the hospital nurse said that was crazy and she used a Geiger counter on me to see how "hot" I was. Following Endocrine appt, doc said TSH was too low and decreased replacement (within first 3 months), fought it since it meant dropping below my preablation dose. Call our office at 410-328-6187. It's hard to raise my head and I couldn't look up at the ceiling. I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). Sounded perfectly reasonable to me. This was nice because I now had an idea of the surroundings I would be in when I woke up from surgery. He got out the floor roll to start working on my leg muscle as well man that hurts. I did not receive a call, so, I showed up at the appointed time and was taken back to pre-op at almost exactly 2pm. Sorry I know this is long. I did the thyrogen shots instead of going off of my synthroid, so if you have that option, would 100% do it. HI All, I do remember them asking me a few times if I was in pain and giving me more pain medication. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. I go back to my Drs office for results next week and am doing my best trying to stay away from my sweet family and dog. I also feel much more anxious and depressed. I was sent to the ICU (I knew I would be going there) because the surgeon wanted me to have better nurse ratios overnight. My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. I also felt myself getting hungry which was a good sign. Could this be from the RAI even 3 weeks after? That said I had this horrible monkey on my back for weeks and I really couldn't shake it. I underwent a thyroidectomy and extensive bilateral neck dissection two years ago. He has started scheduling me with weekly appointments. doi: 10.1097/MD.0000000000018309. 7) Did an RAI 90mci on Sept 4th at night. Minor differences in their approach. I was hospitalized and bored out of my skull till Friday May 7th when they released me (I had to get my levels to less than 7mr/hour at 1 meter). If you look it up on the Internet it is supposed to be hooked up to an external temperature air conditioning unit. God, family, friends and prayer are what got me through these last 7 months with thyroid cancer. The week of the 20th to 25th I had my first run-through of TAP class, there is so much information they give you there I am so glad I can go again prior to retiring. Increase in pain at the incision that is not relieved by pain medication. 5) Does the TSH suppression level really effect the possibility of spread? The site is secure. None for cancer, but enough to make me a believer in getting a second opinion. I reminded them I was 50 miles away, and they said to keep my phone with me. The reasons for that are in this post https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/its-100-for-sure-cancer-pathology-report-back/ Hi! The surgery before me was running late and the clock just kept getting later and later. This option may be indicated if a thyroid nodule is small and localized to one side of the . 1) When can I start running and exercising? He took a look at me, said everything looked great and that he was writing a discharge order for me. My Experience with thyroid cancer - so far: Papillary and follicular thyroid cancer (differentiated), Multiple endocrine neoplasia type 2 (MEN2), Mental challenges of living with thyroid cancer, ThyCa fundraising and thyroid cancer research grants. You can relieve the discomfort using non-steroidal pain medication like ibuprofen. undefined will no longer be visible to you including posts, replies, and photos. The next thing I remember was sliding back to the cart to be wheeled to the recovery room. A complete neurologic examination confirmed otherwise normal cranial nerves. Once there I registered and was sent to the 11th floor where I was placed in a nice looking hospital room. That seems crazy low, is there any benefit at < 0.1 vs < 1.0? Thyroid function labs were all within normal range. And yes, I know it could have been worse. Ultrasound revealed another Lymphnode near Thryoid bed that is 1.5cm (Where did that come from, could it be enlarged due to surgery? Application of the healthcare failure mode and effects analysis system to reduce the incidence of posture syndrome of thyroid surgery. He admitted that he would have liked to have seen me when I was still had my thyroid issue but we will work from where I am. I felt bad the first two days but that was it. I was advised to see an endo ASAP. In January I was beginning to have a hypersensitive gag reflex. Trust me they are, but I worked it out. Be careful. It just takes the right approach. This was another full day at Madigan because it takes 4+ hours just to get through the line and get through the Pre Admission unit. Endocrine Today | A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. In any event, we went to the store when I got home and stocked up on ice cream, yogurt and pudding. Removing lymph nodes in the neck (lymph node dissection). Emerging from my first anesthesia experience was quite honestly like waking up from a bad alcohol blackout where you have no idea what was going on for the last few minutes, hours, days?, weeks? My body scan was interesting. I had to make a decision. I really looked into doing the surgery using the daVinci robot with the incision in the arm pit not on the neck. First, let me say, I don't like iced water. Now, remember, I chose the doctor who does up to 500 thyroidectomies per year over the one who only does 50. Is RAI 90MCI enough to take out 2 lymphnodes? Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. I was told I had a goiter and it could be cancer so I needed to get to my primary dr asap. Reprinted with permission. Meeting went good although it was just me S. Cheryl and the leader of the group this time normally they have a few others. Would really love some advice on how to proceed about improving my breathing. Patients who undergo thyroid surgery frequently suffer from unpleasant symptoms such as a stretching, choking, or pressing feeling or discomfort in the neck for a long time. As a complete aside, that bair paws gown they'd put me under was starting to heat up like turkey in a browning bag. Bookshelf Post-Operative Instructions for Parathyroid Surgery. Anyway - I am still alone in hotel away from Family after RAI. On Feb 25th I had the first visit to mental health but do to the fact that my hearing was as bad as it was along with the recovering from surgery I was rescheduled for a later time. Ask to be checked with a Geiger counter to determine when you are safe to be around your family. The ENT said I didn't need a biopsy because my nodule was so big and he recommended to just do a total thyroidectomy (TT). It will go away. 5 May 2011 1 year out from treatment (for radiation) So, they gave me another shot of something for pain. I can turn my head side to side and rotate them with some discomfort, but I feel the discomfort fading gradually. Results. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. That was attributed the nodules and the cancer. I got 57mci of RAI. "Neck pain and discomfort scale" and "Patient and Observer Scar Rating Scale" were applied again in both phone calls. Gen A, elik SU, Gen V, Gkmen D, Tur BS. She felt my neck and again felt nothing and sent me on my way. Federal government websites often end in .gov or .mil. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. Can it spread fast?) 29th of July. 2007 Mar;39(2):126-32. doi: 10.2340/16501977-0015. This cancer also caused me to put radiation through my entire body possibly damaging me AND my family.
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