The Sickle Cell Society recently collaborated with Patient Voices and recruited participants to a residential workshop for families with sickle cell in order that they could script and produce videos to tell their stories.
Stories by parents, children with sickle cell and their siblings are now online as a useful resource to be viewed and shared: www.patientvoices.org.uk/terrificteens.htm
Patient Voices is an organisation that uses digital storytelling methods to gain insight and drive organisational change. Find out more about the organisation here.