Sickle Cell Disorders (SCD) & Employment
Sickle cell disease or sickle cell disorder (SCD) is the most common single-gene condition in England, with around 15,000 people living with SCD. The sickle cell gene is more widespread in areas of the world that either are, or were once, malarial. It is an inherited life-long condition, characterized by severe pain, chronic pain, chronic anaemia and fatigue, with the possibility of long-term organ damage. SCD is very variable both between different people and within the same person over time.
The aim of this project is to co-produce evidence, working together with people living with SCD of: 1) barriers to employment and 2) enablers to employment. The project is funded from January 2018 to January 2020