Prescription Charges Questionnaire









The Sickle Cell and Thalassaemia All Party Parliamentary Group (SCTAPPG) is looking to research the effect of prescription charges on the day-day lives of service users. With your help we hope to shine a light on this burning injustice that so many people face. If you have any queries about this research please contact:

Please kindly click on the link below to fill out the questionnaire

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Travel Insurance For Sickle Cell

This list is collated from experiences of people with sickle cell, who have found these insurers help them. Please note that insurance premiums are likely to be higher for people with sickle cell, and insurance may also vary based upon circumstances, e.g. whether you have had a bone marrow transplant, what medication you are taking, etc.

If you live with sickle cell and have had a positive or negative experience with any of the insurers on this list, or want to recommend another insurance company, please send your feedback to

World First – 0845 908 0161 –

All Clear Travel Insurance- 0845 250 5350

Make Sure Travel- 0845 309 4436

Worldwide Insurance Services- 01892 833 338

Freedom Insurance Limited- 08707 743 760

Able 2 Travel- 01892 839 501

Voyager Insurance Services- 01483 562 662

Avanti Travel Insurance- 01376 560 844

Explorer Travel Insurance- 01244 665 700

Top Dog Insurance- 0800 954 9932

Holiday Extras- 0800 093 5478

Elect Travel Insurance- 0844 980 0211

Flexi Cover Direct- 0843 479 2346

Good to Go Insurance- 0844 334 0160


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BSH 2019 | Transitional care priorities for teenagers/young adults with SCD and chronic diseases

Subarna Chakravorty, MBBS, FRCPath, MRCPCH, PhD, King’s College Hospital NHS Foundation Trust, London, UK, speaks at the British Society for Haematology (BSH) 2019 Annual Meeting, held in Glasgow, UK. She discusses the transitional care priorities for teenagers and young adults with sickle cell disease.

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BBC Lifeline Appeal (Roald Dahl’s Childrens Charity)

Roald Dahl’s Marvellous Children’s Charity funds over 70 Roald Dahl Nurses. They provide the best possible healthcare for seriously ill children in the UK. We are delighted to say that Roald Dahls children’s charity has been chosen for the BBC’s festive lifeline appeal. The appeal that as been running for 25 years has supported over 300 charities and aims to highlight their work.

This month the BBC will shine a light on the work Roald Dahl nurses do to support seriously ill children and their families in the UK, by airing a short film on the BBC. This is part of the televised appeal to be broadcasted on: BBC 1 on 16th December at 1.50PM, on BBC 2 on 19th December at 1PM and on the BBC’s other digital channels. 

You can follow Roald Dahl’s charity on twitter @RoaldDahlFund, Facebook: by finding Roald Dahl’s Marvellous Children’s Charity, YouTube: Roald Dahl channel or LinkedIn: Roald Dahl’s Marvellous Children’s Charity!

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